From PRWeb The FSHD Society announced today that it has signed a memorandum of understanding to enter into a three-year agreement to enable the expansion of the international facioscapulohumeral muscular dystrophy […]
FSHD Society signs agreement to expand CTRN
Miami FSHD Family Day Talks
Here are the agenda, speaker biographies, and presentation materials from our Miami FSHD Family Day Conference, which was held on Saturday, February 23, 2019, at the beautiful Newman Alumni Center […]
Treatments for FSHD: A broader view
[…] the Research program for Neuromuscular Disorders. We hear that currently there is “no cure for FSHD,” but this does not mean there is no treatment. Treatment and cure are two […]
(Cautious) optimism in FSHD drug development
[…] are critical in helping to transform optimism into reality by Ken Kahtava, Chief Business Officer, FSHD Society Breakthroughs in FSHD research have identified the primary mechanism that causes FSHD. It […]
Applying AI to FSHD research
Using Artificial Intelligence to Analyze FSHD Data The FSHD Society announced that it is launching a collaboration involving the FSHD Clinical Trial Research Network (CTRN) and BullFrogAI, an innovator in […]