[…] a good Samaritan finds the treasure and returns it. That’s what happened recently when long-time FSHD Society member Don Burke was updating the Wikipedia page on Facioscapulohumeral muscular dystrophy and […]
From the Wayback Machine, 2010
Gathering Place
[…] for editing and will not appear after you publish the changes. Preview modal- Join BetterLife FSHD Today! https://www.fshdsociety.org/wp-content/uploads/2024/05/Welcome-to-BetterLife-Final-with-updated-logo.mp4 Sign up here! No one should have to walk the FSHD journey […]
Advocacy
It is crucial that FSHD voices are heard. By engaging with elected officials, regulatory agencies, and government offices, we can make a big difference in getting treatments to families faster. […]
FSH Society Hails Major Breakthrough in FSH Muscular Dystrophy
[…] President and CEO of the FSH Society and a 48-year-old patient with facioscapulohumeral muscular dystrophy (FSHD), the most common form of muscular dystrophy, hailed new findings, published today in Science, […]
Pacific Northwest Chapter
[…] to the Pacific Northwest Chapter! Thank you for visiting the Pacific Northwest Chapter of the FSHD Society! We are here to build a local community of patients, family and friends, […]