Advance Research Every breakthrough in FSHD has been made because patients and their family members got involved. We believe a treatment is within sight; your participation will move us closer, […]
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2020 Year-End Report
[…] Donor Impact Report Regardless of what is happening in the world, facioscapulohumeral muscular dystrophy ( FSHD) does not stop its devastating progression, and neither can we. Your involvement, your support, […]
Current Trials and Studies
[…] for editing and will not appear after you publish the changes. Preview modal- Join BetterLife FSHD Today! https://www.fshdsociety.org/wp-content/uploads/2024/05/Welcome-to-BetterLife-Final-with-updated-logo.mp4 Sign up here! Participate in a Clinical Study or Trial Clinical studies […]
Finding Care
[…] for editing and will not appear after you publish the changes. Preview modal- Join BetterLife FSHD Today! https://www.fshdsociety.org/wp-content/uploads/2024/05/Welcome-to-BetterLife-Final-with-updated-logo.mp4 Sign up here! Dealing effectively with FSHD requires a team approach. Your […]
FSH Society awards $690,894 in new research grants
[…] that occur naturally in our cells to repress DUX4, the “toxic gene” thought to cause FSHD. A deeper dive into why FSHD muscle may have trouble regenerating. These are some […]