Dealing effectively with FSHD requires a team approach. Your medical team should include medical professionals from a variety of disciplines-from neurologists and audiologists to physical and occupational therapists-with experience helping […]
Finding Care
Q&A with Dr. Rabi Tawil, Part 2
[…] University of Rochester, New York, and lead author of the first evidence-based care guideline for FSHD, a project the FSH Society supported through consultations and advocacy. Summaries of the guideline […]
FSH Society awards over a half million dollars for new research
The FSH Society, a world leader in combating facioscapulohumeral muscular dystrophy ( FSHD), announced this spring that it has committed $550,792 in funding to six research projects that aim to […]
FSH Society awards $690,894 in new research grants
[…] that occur naturally in our cells to repress DUX4, the “toxic gene” thought to cause FSHD. A deeper dive into why FSHD muscle may have trouble regenerating. These are some […]
The FSH Society Answers Questions About the New Gene SMCHD1 for FSH Muscular Dystrophy
Members of the international team that discovered the cause of FSHD Type 2 Fueled by funding from the FSH Society, an international research team has discovered the genes that cause […]