Recruit volunteers for your study The FSHD Society maintains the world’s largest contact registry of individuals with FSHD and their family members. We also have relationships with clinicians and patient […]
Research Resources
Looking for Answers?
We can help. The FSHD Society‘s promise is to do all it can to ensure no patient need ever face Facioscapulohumeral muscular dystrophy alone. Facioscapulohumeral muscular dystrophy (also known as […]
About Us
[…] As long as we are here, no patient need ever face this disease alone. The FSHD Society is deeply committed to working with ingenuity and integrity to accelerate research leading to […]
Get Involved
[…] an activity that fits your interests and needs! Join the Walk & Roll to Cure FSHD! The Walk & Roll to Cure FSHD is the only international event focused solely […]
Ways to Give
With generous support from patients, families, friends, major donors, and sponsors, the FSHD Society will keep working to accelerate research leading to treatments. We have earned your trust. The FSHD […]