[…] an activity that fits your interests and needs! Join the Walk & Roll to Cure FSHD! The Walk & Roll to Cure FSHD is the only international event focused solely […]
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Research Resources
Recruit volunteers for your study The FSHD Society maintains the world’s largest contact registry of individuals with FSHD and their family members. We also have relationships with clinicians and patient […]
Ways to Give
With generous support from patients, families, friends, major donors, and sponsors, the FSHD Society will keep working to accelerate research leading to treatments. We have earned your trust. The FSHD […]
Project Mercury
The Global Initiative to Speed the Delivery of Therapies for FSHD Timely access to effective FSHD medicines by patients everywhere faces several challenges: The high failure rates of clinical trials; […]
True Cost Thank You
The FSHD Society is pleased to tell you about our new study called “The True Cost of FSHD.” This is one of the most important and urgent survey-based studies we […]