[…] leaders in our community—activists, celebrities, scientists, doctors, people doing awesome things—to raise worldwide awareness of FSHD. Their stories were utterly compelling, and the sense of optimism for a treatment in […]
Listen to our Giving Tuesday Interviews
The FSH Society Answers Questions About the New Gene for FSH Muscular Dystrophy
Boston, MA / January 24, 2013 Facioscapulohumeral muscular dystrophy ( FSHD) is a disease most people have never heard of, even though it is one of the most common forms […]
World Alliance Leaders
Meet the World FSHD Alliance Leaders Fabio Figueiredo Abrafeu – Brazilian Association for Facioscapulohumeral Dystrophy Eduardo Silveira Abrafeu – Brazilian Association for Facioscapulohumeral Dystrophy Sylvie Genet AFM-Téléthon France FSHD […]
#GivingTuesday Telethon
[…] leaders in our community—activists, celebrities, scientists, doctors, people doing awesome things—to raise worldwide awareness of FSHD. See our interview schedule below. How can you help? Join us on our Facebook […]
A new tool for measuring disease burden in FSH muscular dystrophy
by Amanda Hill, Denver, Colorado FSHD clinical researchers recently published what may soon become a standard battery of assessments for use in clinical trials, an exciting and essential milestone for […]