What is the FSHD Society? We are the world’s largest grassroots network of individuals with FSH muscular dystrophy, their families, and research activists. The FSHD Society was founded in 1991 […]
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Ensuring no one faces Facioscapulohumeral Muscular Dystrophy ( FSHD) alone. Our goal for all impacted by FSHD is two-fold: 1) Speed the delivery of effective treatments and a cure and; […]
Advocating for Change on Capitol Hill
A Day of Impact in Washington, D.C. On May 8th, the FSHD Society held its first-ever Day on Capitol Hill in Washington, D.C. This milestone in our advocacy efforts brought […]
Avidity shares interim data from its FORTITUDE trial
[…] “consistent” reductions in DUX4 activity along with improvements in strength and function by June Kinoshita, FSHD Society Avidity Biosciences, Inc., a San Diego-based biopharmaceutical company, announced this Wednesday, June 12, […]
The challenges of the new era
[…] new era in clinical trials, what do we mean? After all, we have seen previous FSHD trials, including those by Wyeth, aTyr, Acceleron, and Fulcrum’s ReDUX4. What makes the current […]