How DUX4 could cause FSHD without actually being there BY AMANDA HILL, HIGHLANDS RANCH, COLORADO In the FSHD research field, there is an emerging idea that the damage caused by […]
The disappearing bomb
A success for the virtual 2020 International Research Congress
by Jamshid Arjomand, PhD, Chief Science Officer, FSHD Society Our original plan for 2020 was to host the International Research Congress (IRC) in Washington, DC, in proximity to the FDA […]
Raise Awareness
Spread the Word! The FSHD Society is on a mission to raise the visibility and understanding of FSHD in order to further reduce the time to accurate diagnosis, increase empathy […]
Spotlight: Skylar Conover
[…] Dexter A message from Nicky about the Spotlight series: “Feeling connected to others living with FSHD has been a blessing to me these past 10 years, and now I want […]
Education
A Leader in FSHD Education The FSHD Society is a leader in developing clear, authoritative information on fascioscapulohumeral muscular dystrophy (FSHD), from health care and medical advances to research and […]