How DUX4 could cause FSHD without actually being there BY AMANDA HILL, HIGHLANDS RANCH, COLORADO In the FSHD research field, there is an emerging idea that the damage caused by […]
The disappearing bomb
Spotlight: Skylar Conover
[…] Dexter A message from Nicky about the Spotlight series: “Feeling connected to others living with FSHD has been a blessing to me these past 10 years, and now I want […]
Passion and hope at the IRC
The immeasurable value of face to face meetings by Raj Badiani, FSHD UK I was given the opportunity to attend the FSHD Society’s International Research Congress (IRC) in Milan this […]
Michigan Chapter
Welcome to the Michigan Chapter! Thank you for visiting the Michigan Chapter of the FSHD Society which launched in early 2023. We are here to build a local community of […]
International research round-up
Report from the FSHD Society’s 29th annual International Research Congress by Alexandra Belayew, PhD, Mons, Belgium This year’s congress (June 16-17) opened with a keynote presentation by Lexi Pappas, who […]