[…] you for visiting the North Texas Chapter (formerly known as the Dallas Chapter) of the FSHD Society! We are here to build a local community of patients, family and friends, […]
North Texas Chapter
Putting breathing issues on the front burner
Dan Perez’s fierce advocacy will advance knowledge and extend the lives of people with FSHD Breathing complications in FSHD can be deadly, but with the lion’s share of research focused […]
International research round-up
Report from the FSHD Society’s 29th annual International Research Congress by Alexandra Belayew, PhD, Mons, Belgium This year’s congress (June 16-17) opened with a keynote presentation by Lexi Pappas, who […]
Michigan Chapter
Welcome to the Michigan Chapter! Thank you for visiting the Michigan Chapter of the FSHD Society which launched in early 2023. We are here to build a local community of […]
Clinical Trial Research Network
Clinical Trial Research Network The FSHD Clinical Trial Research Network (CTRN), launched in 2016 with funding by the FSHD Society, is a cornerstone of our strategy to accelerate the development […]