[…] higher than we can when we go it alone. Led by volunteers and supported by FSHD Society staff, the Chapter Program is our greatest opportunity to fund more research, connect […]
Local Chapters
Passion and hope at the IRC
The immeasurable value of face to face meetings by Raj Badiani, FSHD UK I was given the opportunity to attend the FSHD Society’s International Research Congress (IRC) in Milan this […]
UMass study seeks volunteers
[…] at the University of Massachusetts Medical School (UMMS) seek individuals with facioscapulohumeral muscular dystrophy ( FSHD) to participate in an FSHD Biomarker Study. This will be conducted by Dr. Robert […]
How do I talk about this?
[…] don’t sugarcoat their fears, but many, somewhat unexpectedly, find positive benefits from their diagnosis. Managing FSHD: One patient’s perspective. By an FSHD Society board member who has thought deeply about […]
Newcomer’s Toolkit
Welcome! While no one wishes for a diagnosis of FSHD, now that you are here, you are about to join an awesome community. We are re-writing the future by taking […]