Dan Perez’s fierce advocacy will advance knowledge and extend the lives of people with FSHD Breathing complications in FSHD can be deadly, but with the lion’s share of research focused […]
Putting breathing issues on the front burner
North Texas Chapter
[…] you for visiting the North Texas Chapter (formerly known as the Dallas Chapter) of the FSHD Society! We are here to build a local community of patients, family and friends, […]
Clinical Trial Research Network
Clinical Trial Research Network The FSHD Clinical Trial Research Network (CTRN), launched in 2016 with funding by the FSHD Society, is a cornerstone of our strategy to accelerate the development […]
Local Chapters
[…] higher than we can when we go it alone. Led by volunteers and supported by FSHD Society staff, the Chapter Program is our greatest opportunity to fund more research, connect […]
Education
A Leader in FSHD Education The FSHD Society is a leader in developing clear, authoritative information on fascioscapulohumeral muscular dystrophy (FSHD), from health care and medical advances to research and […]