[…] but they are severely hypomethylated. (Figure courtesy of Peter Jones, PhD.) Yes, we’re talking about FSHD On those rare occasions (such as the FSHD Connect meeting) when large numbers of […]
The very model of a modern epigenetic disease
Q & A with Dr. Rabi Tawil, Part 1
[…] University of Rochester, New York, and lead author of the first evidence-based care guideline for FSHD, a project the FSH Society supported through consultations and advocacy. Summaries of the guideline […]
Walk Pioneers Lead the Way!
[…] FSH Society will host its new signature fundraising event, the Walk & Roll to Cure FSHD in five communities from coast to coast. These Volunteer Leaders are paving the way for their […]
Fulcrum’s interim findings from ReDUX4 trial are “encouraging”
[…] testing the effect of a drug called losmapimod in individuals with facioscapulohumeral muscular dystrophy ( FSHD). The drug, which is taken as a pill twice a day, is intended to […]
Arizona Chapter
Arizona Chapter Thank you for visiting the Arizona Chapter of the FSHD Society. We are here to build a local community of patients, family and friends, and help them connect […]