[…] the weight of responsibility By David Lukas, Village of Lakewood, Illinois I was diagnosed with FSHD in April 2015. In October 2015, I participated a clinical research trial in Rochester, […]
The last one in
Fighting for life insurance
Excerpt from Howard Chabner‘s forthcoming FSHD Autobiography: I tried to find life insurance but brokers told me I was uninsurable because of my FSHD. Finally, one broker found a company […]
Get a MOVE on!
by June Kinoshita, FSHD Society As an FSHD patient raises her arm, Jeffrey Statland, MD, provides a resistive force to assess her strength. When doctors diagnose individuals with a progressive […]
GivingTuesday Radiothon is December 1
[…] our second annual GivingTuesday Radiothon to raise funds and worldwide awareness of Facioscapulohumeral muscular dystrophy (FSHD). Streamed over Facebook Live, our intrepid host Tim Hollenback will conduct nonstop interviews from […]
Online Communities
FSHD Society Facebook Page Like and Follow us to get the latest news and updates from the FSHD Society, post questions, share information, and share our posts with your […]