Arizona Chapter Thank you for visiting the Arizona Chapter of the FSHD Society. We are here to build a local community of patients, family and friends, and help them connect […]
Arizona Chapter
Senator Elizabeth Warren addresses FSH Society meeting
FSHD Connect Unites Patients, Doctors and Researchers to Explore New Insights on Rare Disease Boston, MA (August 18, 2014) (PRWEB) August 18, 2014 The FSH Society, the Massachusetts-based charitable […]
Aging in place – Tips for planning ahead
[…] brings change. Life would be boring if it didn’t encompass change. Yet the changes that FSHD brings to us are more intense than most—-if not all—-of us would voluntarily choose. […]
Calgary 360 slides
Here are the slides from the Calgary FSHD 360 meeting on March 16, 2024. Welcome! What is a 360? What is the CTRN? Beth Johnston, FSHD Society, and Neil Camarta, […]
What to do in a crisis
[…] crises are prevalent in our community. Help is out there Kylee Helmke A diagnosis of FSHD poses life-long challenges. Individuals live with an undercurrent of anxiety about how their symptoms […]