FSHD Society and Critical Path Institute will aggregate data in C-Path’s Rare Diseases Cures Accelerator-Data and Analytics Platform The FSHD Society announced that it has partnered with Critical Path […]
Collaborating to collect clinical trial data
Gene Interference Technology Used Against FSH Muscular Dystrophy Genetic Defect
[…] the award-winning non-profit and global leader in the quest to cure Facioscapulohumeral Muscular Dystrophy ( FSHD), announced that an FSH Society-funded research team led by Peter Jones, PhD, at the […]
GivingTuesday Radiothon is December 1
[…] our second annual GivingTuesday Radiothon to raise funds and worldwide awareness of Facioscapulohumeral muscular dystrophy (FSHD). Streamed over Facebook Live, our intrepid host Tim Hollenback will conduct nonstop interviews from […]
Get a MOVE on!
by June Kinoshita, FSHD Society As an FSHD patient raises her arm, Jeffrey Statland, MD, provides a resistive force to assess her strength. When doctors diagnose individuals with a progressive […]
Kansas City Chapter
[…] to the Kansas City Chapter! Thank you for visiting the Kansas City Chapter of the FSHD Society which officially launched in August 2019. We are here to build a local […]