Discovering the Cause and the Cure for FSHD The FSHD Society was founded on the idea that we had to do something extraordinary to discover the cause and cure for […]
Extraordinary Measures
Corinne Bronfman, October 28, 1947 – October 7, 2022
She leaves a legacy of remarkable progress toward treatments for FSHD The FSHD Society was deeply saddened to learn of the passing of Corinne Bronfman on October7, in Washington DC. […]
$3.4 million to speed us on our journey (Part 3)
[…] for the operation of a society or enterprise.” —Oxford Dictionary In a rare condition like FSHD, it’s unlikely for any one research center to be able to enroll enough patients […]
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We’re taking extraordinary measures to End FSHD! Extraordinary measures are woven into the fabric of the facioscapulohumeral muscular dystrophy (FSHD) community and the FSHD Society. Thirty years ago, the FSHD […]
Springboards to the future
[…] often speak of “filling potholes” and “overcoming obstacles” toward treatments and cures, but what the FSHD Society has done is much more dynamic. We are not just bridging gaps but […]