Advance Research Every breakthrough in FSHD has been made because patients and their family members got involved. We believe a treatment is within sight; your participation will move us closer, […]
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British Columbia Chapter
[…] email, follow us on Facebook, or join in the conversation on our private Facebook group. FSHD Canada Foundation has partnered with the FSHD Society to support and grow the FSHD […]
Springboards to the future
[…] often speak of “filling potholes” and “overcoming obstacles” toward treatments and cures, but what the FSHD Society has done is much more dynamic. We are not just bridging gaps but […]
$3.4 million to speed us on our journey (Part 3)
[…] for the operation of a society or enterprise.” —Oxford Dictionary In a rare condition like FSHD, it’s unlikely for any one research center to be able to enroll enough patients […]
Corinne Bronfman, October 28, 1947 – October 7, 2022
She leaves a legacy of remarkable progress toward treatments for FSHD The FSHD Society was deeply saddened to learn of the passing of Corinne Bronfman on October7, in Washington DC. […]