On February 13, Canadian biotech, Reserverlogix announced that facioscapulohumeral muscular dystrophy ( FSHD) is one of two new indications it is pursuing involving its lead drug, apabetalone (RVX-208) which inhibits […]
Q &A on potential use of BET inhibitors for FSHD
FSHD is not for cowards
There was plenty of ingenuity and grit on display in Denver by June Kinoshita, FSHD Society Many scientists who work on FSHD spend their days bent over test tubes and […]
The FSHD Navigator
So you don’t have to journey by yourself by Anna Gilmore, FSHD Society At the FSHD Society, the families we serve always come first. With that in mind, we are […]
Eye Care Tips and Tricks for FSHD
[…] also known as Ocular Surface Disease (OSD), is a common issue with many in the FSHD community. Symptoms are often described as grittiness, itchiness, or burning especially upon waking up […]
Advocacy and industry partners launch new global coalition to speed delivery of new therapies for FSHD
[…] patients, industry, research and clinical communities in groundbreaking initiative from Fulcrum Therapeutics Today on World FSHD Day, the FSHD Society and Fulcrum Therapeutics announce the launch of Project Mercury, a […]