[…] email, follow us on Facebook, or join in the conversation on our private Facebook group. FSHD Canada Foundation has partnered with the FSHD Society to support and grow the FSHD […]
British Columbia Chapter
Home – Copy
Advance Research Every breakthrough in FSHD has been made because patients and their family members got involved. We believe a treatment is within sight; your participation will move us closer, […]
A holistic approach
What the FSHD Society can and must do for the community by June Kinoshita, FSHD Society The FSHD Society has been tightly focused on understanding FSHD and speeding up the […]
Rare Disease Day
[…] Day There are many ways you can raise your voice and join the chorus of FSHD Community members telling our story… Take a picture with hands up (similar to RDD […]
Blazing a Trail to the Future
[…] your network and loved ones to join our quest for treatments and a cure for FSHD. I want to acknowledge our deep appreciation for your past support and generosity. Many […]