Discovering the Cause and the Cure for FSHD The FSHD Society was founded on the idea that we had to do something extraordinary to discover the cause and cure for […]
Extraordinary Measures
Rare Disease Day
[…] Day There are many ways you can raise your voice and join the chorus of FSHD Community members telling our story… Take a picture with hands up (similar to RDD […]
Glee star is Walk & Roll national ambassador
The FSHD Society announced today that Max Adler, an actor best known for his roles on the hit series “Glee,” available for streaming on Netflix, and “Switched at Birth”, is… Read More »
Support Us
We’re taking extraordinary measures to End FSHD! Extraordinary measures are woven into the fabric of the facioscapulohumeral muscular dystrophy (FSHD) community and the FSHD Society. Thirty years ago, the FSHD […]
Our Mission
[…] As long as we are here, no patient need ever face this disease alone. The FSHD Society is deeply committed to working with ingenuity and integrity to accelerate research leading to […]