[…] wrong with me as I faced the consequences of what I eventually learned was early-onset FSHD. I had foot drop. I couldn’t close my eyes. I had severe scapular winging, […]
AFOs with a sparkly dress
Nationwide Virtual Walk & Roll for FSH Muscular Dystrophy
The FSHD Society, the world’s largest research-focused patient advocacy organization for facioscapulohumeral muscular dystrophy (FSHD), announced that it will hold a slew of virtual Walk & Roll to Cure FSHD […]
Grants
Apply for a Grant The FSHD Society invites you to submit a proposal in response to the following Request For Proposals (RFPs) for the 2024-2025 grant cycle. We welcome collaborative […]
Extraordinary Measures – Many shots on goal
[…] is licensed under the Creative Commons Attribution-Share Alike 3.0 With a dozen or more potential FSHD therapies in the drug development pipeline, why is the FSHD Society continuing to invest […]
MOVE needs you!
As an FSHD patient raises her arm, Jeffrey Statland, MD, provides a resistive force to assess her strength. To the FSHD community, we’re sharing this invitation from Drs. Statland and […]