[…] your network and loved ones to join our quest for treatments and a cure for FSHD. I want to acknowledge our deep appreciation for your past support and generosity. Many […]
Blazing a Trail to the Future
Why I exercise
[…] clinical trials, and recent announcements by pharma companies bring increasingly optimistic news that treatment for FSHD is getting closer by the day. As research and development move forward utilizing innovative […]
Honoring Rare Disease Day: The Power of Collaboration
Fulcrum and the FSHD Society Reflect on Partnership at Advocacy Event On February 28th, Fulcrum Therapeutics hosted a Rare Disease Day Advocacy Event at their headquarters in Cambridge, MA. This […]
The FACT Alliance
[…] also operate within similar constraints, albeit with larger budgets but more urgent deadlines. In tackling FSHD, most companies face similar questions and hurdles to move their therapeutic solutions forward. Left […]
MOVE needs you!
As an FSHD patient raises her arm, Jeffrey Statland, MD, provides a resistive force to assess her strength. To the FSHD community, we’re sharing this invitation from Drs. Statland and […]