[…] is licensed under the Creative Commons Attribution-Share Alike 3.0 With a dozen or more potential FSHD therapies in the drug development pipeline, why is the FSHD Society continuing to invest […]
Extraordinary Measures – Many shots on goal
Nationwide Virtual Walk & Roll for FSH Muscular Dystrophy
The FSHD Society, the world’s largest research-focused patient advocacy organization for facioscapulohumeral muscular dystrophy (FSHD), announced that it will hold a slew of virtual Walk & Roll to Cure FSHD […]
AFOs with a sparkly dress
[…] wrong with me as I faced the consequences of what I eventually learned was early-onset FSHD. I had foot drop. I couldn’t close my eyes. I had severe scapular winging, […]
Grants
Apply for a Grant Thank you for your interest in the FSHD Society’s grant opportunities. Please note that the grant portal is now closed, and we are no longer accepting […]
Project 2025
Dear Friends, At the FSH Society, our moonshot is to get to a treatment for FSHD―an intervention that will slow or halt the muscle deterioration. We have set a target […]