[…] also operate within similar constraints, albeit with larger budgets but more urgent deadlines. In tackling FSHD, most companies face similar questions and hurdles to move their therapeutic solutions forward. Left […]
The FACT Alliance
Honoring Rare Disease Day: The Power of Collaboration
Fulcrum and the FSHD Society Reflect on Partnership at Advocacy Event On February 28th, Fulcrum Therapeutics hosted a Rare Disease Day Advocacy Event at their headquarters in Cambridge, MA. This […]
Why I exercise
[…] clinical trials, and recent announcements by pharma companies bring increasingly optimistic news that treatment for FSHD is getting closer by the day. As research and development move forward utilizing innovative […]
Why seek genetic testing for Facioscapulohumeral muscular dystrophy?
[…] British Columbia decided it would not provide national health insurance coverage for genetic testing of FSHD, it triggered this response from a constituent. She raises important arguments that could apply […]
International workshop spotlights progress in facioscapulohumeral muscular dystrophy research
[…] held in Boston on October 5-6, 2015, brought together over 100 investigators, including leaders in FSHD research and many industry sponsors, to discuss advances made over the past year. In […]