[…] to view full size. Heat map of all 1330 muscles scored in 13 individuals with FSHD. Subjects are arranged (left to right) from lowest to highest mean MRI score. Muscles […]
Whole-Body MRI Yields New Insights
FSH Society honors leaders in science and advocacy
[…] Oakes, celebrated 25 years of progress toward finding a cure for Facioscapulohumeral Muscular Dystrophy ( FSHD). The gala, which attracted more than 250 researchers, scientists, FSHD patients and supporters, was […]
Nearly $1.2 million committed in 2017 to FSH muscular dystrophy research
[…] is the gene widely viewed as a key instigator of muscle weakness and degeneration in FSHD. See related story. Projects by Camille Dion, Yosuke Hiramuki, and Sanxiong Liu take aim […]
Project 2025
Dear Friends, At the FSH Society, our moonshot is to get to a treatment for FSHD―an intervention that will slow or halt the muscle deterioration. We have set a target […]
Pandemics past and a diagnosis long delayed
[…] Palm Harbor, Florida The Mirzas I am an 86 year old white male, living with FSHD for the past 68 years. I wanted to share my life’s FSHD experiences with […]