[…] research that will directly impact patients and their families living with FSH Muscular Dystrophy ( FSHD). Facioscapulohumeral muscular dystrophy, or FSHD, is a genetic disorder that leads to the weakening […]
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2020 Festive Evening of Song
A Stay-at-Home Concert to benefit the FSHD Society The FSHD Society Festive Evening Concert Committee will miss seeing you in person this year. We invite you to enjoy a stay-at-home […]
Idaho Chapter
[…] to gain strength, support and encouragement as we push forward in finding a cure for FSHD. Last but not least let’s HAVE SOME FUN while we accomplish these goals! Please […]
Sacramento Chapter
Welcome to the Sacramento Chapter! Thank you for visiting the Sacramento Chapter of the FSHD Society which officially launched in September 2018. We are here to build a local community […]
Progress in 2013
Advocating for FSHD at the World Muscle Society Congress After wrapping up what was a busy first month of 2014, we finally have a moment to look back on 2013 […]