[…] with a disease that most people have never heard of. Called Facioscapulohumeral Muscular Dystrophy, or FSHD, the disorder is named for the body areas that are typically affected: the face […]
The Centers for Disease Control Spotlights FSH Muscular Dystrophy
Celebrities Come Out for FSH Muscular Dystrophy
[…] stand against bullying. Off camera, Adler is a gentle champion for FSH muscular dystrophy ( FSHD), a disabling muscle disease from which both his mother and grandmother suffered. On Sunday, […]
Musical Stars Shine for FSH Muscular Dystrophy
[…] concert at the New York Botanical Gardens to raise funds for FSH Muscular Dystrophy ( FSHD). The most common form of muscular dystrophy, FSHD has left Blier unable to walk. […]
Susan Barclay’s 50th Birthday Challenge #Whistle4FSH
#Whistle4FSH has one goal—to find treatments for FSHD, the most prevalent type of muscular dystrophy, caused by a genetic mutation on chromosome 4. People with FSHD can not only lose […]
My Boston Adventure: traveling solo with my wheelchair
[…] of those with disabilities, not even to demonstrate the true strength one can have with FSHD. I had to do this to prove to myself that if I can find […]