[…] of those with disabilities, not even to demonstrate the true strength one can have with FSHD. I had to do this to prove to myself that if I can find […]
My Boston Adventure: traveling solo with my wheelchair
Susan Barclay’s 50th Birthday Challenge #Whistle4FSH
#Whistle4FSH has one goal—to find treatments for FSHD, the most prevalent type of muscular dystrophy, caused by a genetic mutation on chromosome 4. People with FSHD can not only lose […]
Fulcrum Announced Results of Phase 1 Clinical Trial of Losmapimod
[…] Phase 1 clinical trial of losmapimod to treat the root cause of facioscapulohumeral dystrophy ( FSHD). Losmapimod is a selective p38α/β mitogen activated protein kinase (MAPK) inhibitor. Fulcrum exclusively in-licensed […]
Why I did a 180 on participating in clinical trials
[…] ignore what was happening to my body. But denial only works for so long with FSHD. As I lost muscle strength, what replaced it was pain – pain in the […]
Pivot
Larry Chase out with his dog. by Larry Chase Those of us who live with FSHD must “pivot” our world constantly. Pivot—the buzz word for what we all are going […]