[…] Katz, MD, and Katy de Valle, research physical therapist More than 50% of people with FSHD develop symptoms as children or teens. When treatments to slow or stop FSHD are […]
Getting treatments to young patients
2023 Annual Report
[…] and commitment have empowered us to implement an aggressive plan to accelerate therapeutic development for FSHD. Recognizing the crucial role we could play, we have united pharmaceutical companies, researchers, government […]
Every person’s effort takes us closer to the tipping point
[…] stories. Amy Bekier, San Diego chapter director From my perspective as a volunteer leader, the FSHD Society’s Volunteer Leadership Summit is one of the most important gatherings of the year. […]
Engineering new muscles
[…] coax cells to develop into muscle by Fred Thys, Weymouth, Massachusetts Neil Camarta, who has FSHD and founded the FSHD Canada Foundation, discovered that there is something called muscle regeneration […]
Clinical care vs. clinical research
Know the difference by Amanda Hill, FSHD Society In your journey with FSHD, you’ve probably heard about the importance of seeing your doctor regularly. You also most likely have heard […]