Get Involved! Every connection counts and there are many ways to plug in to the FSHD community. From fundraising events to educational offerings available online and in person, there is […]
Events
Our genetic testing program
Lowering barriers to genetic testing for FSHD Currently, one of the eligibility criteria for volunteering in an FSHD clinical trial is positive confirmation of the disease by a clinically approved […]
A long journey but worth it
Face-to-face meetings add an extra layer of feelings and motivation by Ricardo Gerpe, FSHD Spain Alexandra Belayew and Ricardo Gerpe at FSHD Connect 2022. I had decided to go to […]
Activating the global community
Together we are stronger than FSHD The FSHD Society’s mission is to advocate for every patient to live fully while doing all we can to accelerate the development of treatments […]
Los Angeles Chapter
[…] to the Los Angeles Chapter! Thank you for visiting the Los Angeles Chapter of the FSHD Society which officially launched in August 2018. We are here to build a local […]