Together we are stronger than FSHD The FSHD Society’s mission is to advocate for every patient to live fully while doing all we can to accelerate the development of treatments […]
Activating the global community
A long journey but worth it
Face-to-face meetings add an extra layer of feelings and motivation by Ricardo Gerpe, FSHD Spain Alexandra Belayew and Ricardo Gerpe at FSHD Connect 2022. I had decided to go to […]
Our genetic testing program
Lowering barriers to genetic testing for FSHD Currently, one of the eligibility criteria for volunteering in an FSHD clinical trial is positive confirmation of the disease by a clinically approved […]
Pianist Steven Blier and Tony Award-Winner Judy Kaye to Perform Together to Benefit the FSH Society
[…] a rare union of two musical icons to raise funds for FSH muscular dystrophy research. FSHD, one of the most prevalent types of muscular dystrophy, is a degenerative muscle disease […]
Gene interference technology used in FSH muscular dystrophy
[…] the award-winning non-profit and global leader in the quest to cure Facioscapulohumeral Muscular Dystrophy ( FSHD), announced that an FSH Society-funded research team led by Peter Jones, PhD, at the […]