Larry Chase out with his dog. by Larry Chase Those of us who live with FSHD must “pivot” our world constantly. Pivot—the buzz word for what we all are going […]
Pivot
Why I did a 180 on participating in clinical trials
[…] ignore what was happening to my body. But denial only works for so long with FSHD. As I lost muscle strength, what replaced it was pain – pain in the […]
FSH Society funds genome editing project
[…] lab. These changes can allow us to prove or disprove hypotheses about the cause of FSHD, and when done in stem cells, they might pave the way for a future […]
Fulcrum Announced Results of Phase 1 Clinical Trial of Losmapimod
[…] Phase 1 clinical trial of losmapimod to treat the root cause of facioscapulohumeral dystrophy ( FSHD). Losmapimod is a selective p38α/β mitogen activated protein kinase (MAPK) inhibitor. Fulcrum exclusively in-licensed […]
Utah Chapter
Welcome to the Utah Chapter! Thank you for visiting the Utah Chapter of the FSHD Society! We are here to build a local community of patients, family and friends, and […]