Welcome to the Utah Chapter! Thank you for visiting the Utah Chapter of the FSHD Society! We are here to build a local community of patients, family and friends, and […]
Utah Chapter
Clinical care vs. clinical research
Know the difference by Amanda Hill, FSHD Society In your journey with FSHD, you’ve probably heard about the importance of seeing your doctor regularly. You also most likely have heard […]
Engineering new muscles
[…] coax cells to develop into muscle by Fred Thys, Weymouth, Massachusetts Neil Camarta, who has FSHD and founded the FSHD Canada Foundation, discovered that there is something called muscle regeneration […]
Every person’s effort takes us closer to the tipping point
[…] stories. Amy Bekier, San Diego chapter director From my perspective as a volunteer leader, the FSHD Society’s Volunteer Leadership Summit is one of the most important gatherings of the year. […]
2023 Annual Report
[…] and commitment have empowered us to implement an aggressive plan to accelerate therapeutic development for FSHD. Recognizing the crucial role we could play, we have united pharmaceutical companies, researchers, government […]