The FSHD Society announced the opening today of its FSHD Connect Classroom, the first online, full-day educational conference in the organization’s history. The online conference takes the place of FSHD […]
FSHD Society opens its first global, online educational conference
Landmarks and Social Media Are Turning Orange This World FSHD Day
This Saturday, June 20, 2020, the FSHD Society, the world’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD), will be joined by dozens of advocacy groups and allies around […]
FSHD Gene May Help Tumors Evade the Immune System
[…] MONS, BELGIUM DUX4, the gene that plays a key role in facioscapulohumeral muscular dystrophy ( FSHD), is gaining unexpected notoriety in cancer research. According to a recent study1 from the […]
FSHD Canada awards $20K for FSH Society research grant
[…] Society is pleased to announce that it has received a grant of $20,000 from the FSHD Canada Foundation in support of an exciting, treatment-focused project, “Developing LNA-based therapy for facioscapulohumeral […]
The Global FSHD Innovation Hub
[…] Canada Blaine Penny and Lawrence Korngut, MD. This is a very exciting time for the FSHD community, as new therapeutics are advancing through clinical development and the global patient community […]