This Saturday, June 20, 2020, the FSHD Society, the world’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD), will be joined by dozens of advocacy groups and allies around […]
Landmarks and Social Media Are Turning Orange This World FSHD Day
FSHD Gene May Help Tumors Evade the Immune System
[…] MONS, BELGIUM DUX4, the gene that plays a key role in facioscapulohumeral muscular dystrophy ( FSHD), is gaining unexpected notoriety in cancer research. According to a recent study1 from the […]
FSHD Canada awards $20K for FSH Society research grant
[…] Society is pleased to announce that it has received a grant of $20,000 from the FSHD Canada Foundation in support of an exciting, treatment-focused project, “Developing LNA-based therapy for facioscapulohumeral […]
XPRIZE for FSHD research
SOLVE FSHD, a venture philanthropic organization established to catalyze innovation in Facioscapulohumeral muscular dystrophy (FSHD) research, is partnering with the nonprofit organization XPRIZE Foundation to host a global competition to […]
The 2023 Walk & Roll to Cure FSHD
Breaking the million dollar mark for the first time by Beth Johnston and Erin Saxon, FSHD Society On a sparkling morning this past September, against a majestic view of the […]