[…] Katz, MD, and Katy de Valle, research physical therapist More than 50% of people with FSHD develop symptoms as children or teens. When treatments to slow or stop FSHD are […]
Getting treatments to young patients
#FSHDselfies Shoot a Selfie, Raise Awareness
[…] – Oxford Dictionary FSHDselfies campaign logo Our national social media campaign to raise awareness about FSHD uses the popular cultural meme of the “selfie” – a photograph that one has […]
Clinical Trial Readiness for Facioscapulohumeral muscular dystrophy
Attendees of the Second FSHD Trial Preparedness Workshop, Rochester, NY The FSH Society is co-funding the second FSHD Trial Preparedness Workshop. The Workshop, held from May 29-30, 2015, at the University […]
FSH Society Awards New Round of Research Grants to Support Critical Research on FSH Muscular Dystrophy
[…] that has transformed the science of the little-known and incurable disease, facioscapulohumeral muscular dystrophy ( FSHD), announced a new round of grant award recipients bringing the Society’s total grant awards […]
Mouse grows a human muscle
[…] Wright, an NIH Wellstone Center researcher, who derived them from a muscle biopsy from an FSHD patient and healthy family members. That tissue donation was made possible by FSH Society […]