[…] to the Los Angeles Chapter! Thank you for visiting the Los Angeles Chapter of the FSHD Society which officially launched in August 2018. We are here to build a local […]
Los Angeles Chapter
Events
Get Involved! Every connection counts and there are many ways to plug in to the FSHD community. From fundraising events to educational offerings available online and in person, there is […]
FSH Society latest grant awards
[…] award for a project that will test stem cell therapy in a mouse model of FSHD. A second award goes to a new tactic to prevent DUX4 protein from setting […]
FSH Society Launches Nationwide Signature Walk & Roll Event
Today, The FSH Society, the world’s largest research-focused patient advocacy organization for facioscapulohumeral muscular dystrophy ( FSHD), announced that it has established its first-ever nationwide signature event, the Walk & Roll to […]
Clinical trial readiness study calls for volunteers
by Jim Albert, Eldersburg, MD The FSHD Clinical Trial Research Network (CTRN) is currently recruiting up to 160 FSHD patients across the seven CTRN sites to participate in a study called […]