[…] As a rare condition affecting an estimated 1 in 8,000 individuals in the general population, FSHD presents a challenge when it comes to gathering a critical mass of individuals who […]
Our Manhattan Project
My journey from powerless to powerful
[…] so much hope. Three years ago today, I was diagnosed with fascioscapulohumeral muscular dystrophy ( FSHD). It took me a long time to remember how to pronounce it, spell it, […]
FSH Society Launches Nationwide Signature Walk & Roll Event
Today, The FSH Society, the world’s largest research-focused patient advocacy organization for facioscapulohumeral muscular dystrophy ( FSHD), announced that it has established its first-ever nationwide signature event, the Walk & Roll to […]
FSH Society latest grant awards
[…] award for a project that will test stem cell therapy in a mouse model of FSHD. A second award goes to a new tactic to prevent DUX4 protein from setting […]
Press release from Fulcrum Therapeutics
[…] I am confident in Fulcrum’s ability to face this challenge with tenacity, humility, and spirit. FSHD is an area of tremendous unmet need, we remain as eager as ever to […]