An interview with Tim Hollenbeck, FSHD Radio host Tim Hollenback in his podcasting studio. On the second Tuesday of every month, at 8 p.m. CT, Tim Hollenbeck fires up a […]
“Our stories need to be shared”
Dynamics of DUX4 downstream networks
[…] MD PhD, University of Massachusetts Medical School Kyoko Yokomori, PhD To develop robust therapies for FSHD, we need a better understanding of the sequence of events occurring at the single-cell […]
Our Impact
The FSHD Society is the world’s largest grassroots network of individuals with Facioscapulohumeral Muscular Dystrophy (FSHD), their families, and research activists. The FSHD Society, founded by patients Daniel Perez and […]
Diagnosis
Information about obtaining a diagnosis Getting a formal diagnosis of FSHD by a doctor is an important step. The diagnosis will enable you to obtain FSHD-specific medical care and plan […]
Our Funding Priorities
Our Funding Priorities FSHD Society research and fellowship grant awards provide vital startup funding for investigators in FSHD and research projects on FSHD. The fellowship program allows innovative and entrepreneurial […]