Attendees of the Second FSHD Trial Preparedness Workshop, Rochester, NY The FSH Society is co-funding the second FSHD Trial Preparedness Workshop. The Workshop, held from May 29-30, 2015, at the University […]
Clinical Trial Readiness for Facioscapulohumeral muscular dystrophy
Thank You for Joining Our Contact Registry!
You are Now a Member of the FSHD Society’s Contact Registry for Research Thank You! The FSHD Society maintains the world’s largest contact registry of FSHD patients and families. We […]
Colorado Chapter
Welcome to the Colorado Chapter! Thank you for visiting the Colorado Chapter of the FSHD Society! We are here to build a local community of patients, family and friends, and […]
Our Funding Priorities
Our Funding Priorities FSHD Society research and fellowship grant awards provide vital startup funding for investigators in FSHD and research projects on FSHD. The fellowship program allows innovative and entrepreneurial […]
Diagnosis
Information about obtaining a diagnosis Getting a formal diagnosis of FSHD by a doctor is an important step. The diagnosis will enable you to obtain FSHD-specific medical care and plan […]