[…] by your generosity and commitment, we launched a bold plan to accelerate therapeutic development for FSHD while empowering a growing, active community. We laid out a roadmap with lofty goals […]
2022 Annual Report
Thank You for Joining Our Contact Registry!
You are Now a Member of the FSHD Society’s Contact Registry for Research Thank You! The FSHD Society maintains the world’s largest contact registry of FSHD patients and families. We […]
Muscle loss with Ozempic® and similar drugs
[…] Weight loss typically includes both fat and some muscle. How much muscle a person with FSHD might lose when taking one of these drugs isn’t known. The severity of your […]
Fulcrum halts losmapimod development
[…] taking placebo. This contradicts data from more than five years of natural history studies of FSHD, which have never shown an improvement in RWS in untreated individuals. The Phase 2 […]
Meet Michelle Mellion, MD, our medical advisor
Finding a way around all obstacles by June Kinoshita, FSHD Society One lesson Michelle Mellion, MD, absorbed from seeing patients at a Muscular Dystrophy Association (MDA) neuromuscular clinic is that […]