The FSHD Society is the world’s largest grassroots network of individuals with Facioscapulohumeral Muscular Dystrophy (FSHD), their families, and research activists. The FSHD Society, founded by patients Daniel Perez and […]
Our Impact
#FSHDselfies Shoot a Selfie, Raise Awareness
[…] – Oxford Dictionary FSHDselfies campaign logo Our national social media campaign to raise awareness about FSHD uses the popular cultural meme of the “selfie” – a photograph that one has […]
Walking & Rolling Toward a Cure!
[…] announce the launch of our first nationally branded event, the Walk & Roll to Cure FSHD. This signature fundraising event will take place in September and early October 2018 in […]
Acceleron Announces Preliminary Results from Part 1 of the ACE-083 Phase 2 Trial in Patients with Facioscapulohumeral Dystrophy
[…] and biceps brachii muscle cohorts – – Company plans to initiate Part 2 of the FSHD Phase 2 trial in Q2 2018 – Cambridge, Mass. – January 8, 2018 – […]
Last 2017 Watch is out!
Our last Watch issue of 2017 is available now! Highlights include: Team FSHD Cycling participating in the 36th Race Across America An introduction to new FSH Society CEO, Mark Stone […]