Highlights include: Genetic Source of FSHD Type 2 pinpointed and outlined. FSHD patient climbs for hours through the mountains to visit gorillas in Uganda. FSH Society funds advances in understanding […]
FSH Watch Winter 2013
The Truth Hurts, but I Can Bear It
The following essay was written by Zabrisa, a 16 year old with FSHD who lives in Arizona. Zabrisa Zelinksi “Are you strong enough? Are you really sure you can do […]
University of Kansas seeks volunteers for study
EIM device is noninvasive and painless. FSHD patients are needed for a research study for: The Relationship of Electrical Impedance Myography to Muscle Structure and Function in Facioscapulohumeral Muscular Dystrophy (FSHD). […]
Reflecting on FSHDselfies
[…] seen me as Mia. I tend to be an open book, but the subject of FSHD never really came up. No one felt that they couldn’t ask me why I […]
In Celebration of 25 Years: Thank You
[…] have had the honor and the privilege of helping individuals with facioscapulohumeral muscular dystrophy ( FSHD) and their families educate the general public, fundraise for research to find a cure […]