[…] on September 21st, 2024. Between now and then, we hope you’ll team-up to take down FSHD! 4 or more registered members makes you an official team! When we team up, […]
Walk & Roll Teams
What worries you about the future?
Our Voice of the Patient Forum on drug development for FSHD will take place on April 21st. This landmark event is our community’s platform to testify to the FDA on […]
San Diego Chapter
[…] to the San Diego Chapter! Thank you for visiting the San Diego Chapter of the FSHD Society which officially launched in May 2019. We are here to build a local […]
University of Kansas seeks volunteers for study
EIM device is noninvasive and painless. FSHD patients are needed for a research study for: The Relationship of Electrical Impedance Myography to Muscle Structure and Function in Facioscapulohumeral Muscular Dystrophy (FSHD). […]
Reflecting on FSHDselfies
[…] seen me as Mia. I tend to be an open book, but the subject of FSHD never really came up. No one felt that they couldn’t ask me why I […]