[…] foster Engagement, Connection, Community, and Action! You’ll find essential information such as updates from the FSHD Society, ready access to forms and documents, upcoming training opportunities, access to past trainings […]
Volunteer Resources
Holistic approaches to fitness and wellbeing
[…] to offer “exercise hacks,” one of those who stepped forward was Rita Lynn. Following her FSHD diagnosis, she went through a period of progressive weakening and fatigue that made her […]
Fulcrum Therapeutics and Sanofi to collaborate
[…] losmapimod, an oral small molecule being investigated for the treatment of facioscapulohumeral muscular dystrophy ( FSHD). Under the collaboration and license agreement, Sanofi obtains exclusive commercialization rights for losmapimod outside […]
Mighty micro RNAs
[…] discoveries have contributed to the advancement of research and treatments for facioscapulohumeral muscular dystrophy ( FSHD), and the work recognized in yesterday’s announcement follows in this tradition. The Nobel Committee […]
Feeling Fit with low-impact seated exercises
[…] and consult your health care provider. This week’s leader, known by her Instagram handle @ FSHD Wellness is a fitness enthusiast and active member of the international FSHD Instagram online […]