The following essay was written by Zabrisa, a 16 year old with FSHD who lives in Arizona. Zabrisa Zelinksi “Are you strong enough? Are you really sure you can do […]
The Truth Hurts, but I Can Bear It
FSH Watch Winter 2013
Highlights include: Genetic Source of FSHD Type 2 pinpointed and outlined. FSHD patient climbs for hours through the mountains to visit gorillas in Uganda. FSH Society funds advances in understanding […]
A new way to detect DUX4
[…] Dr. Amini Chermahini and his colleagues were awarded the Best Poster Prize at this year’s FSHD International Research Congress. Here he explains the significance of this work. The FSHD field […]
Managing breathing issues
[…] a leading authority on respiratory issues that can arise in individuals with neuromuscular conditions, including FSHD. In the webinar, Bach recommended that every FSHD patient have respiratory function tested regularly, […]
First FSH Muscular Dystrophy High-Throughput Drug Discovery Study Published
[…] a gene involved in a most common form of muscular dystrophy. Facioscapulohumeral muscular dystrophy ( FSHD) is among the most common muscle-wasting diseases, affecting more than 500,000 people around the […]