At this year’s Inaugural CureFSHD National Gala on November 11, we look to celebrate not just the victories of our tireless researchers and fearless ambassadors, but also the small (yet… Read More »
We Want You to #ShareYourVictory!
The CFC (Combined Federal Campaign): Pledging to the FSH Society
If you are a Federal employee, you are most likely aware of the Combined Federal Campaign, or CFC. It is the official workplace giving campaign of the Federal government. Pledges… Read More »
“Songs in the Key of Steven Blier” wows San Francisco
[ngg_images gallery_ids=”6″ display_type=”photocrati-nextgen_basic_slideshow”] We barely have words to express how grateful we are to everyone who contributed so much spirit and hard work to make our first-ever San Francisco gala, “Songs in the… Read More »
FSH Watch Spring 2014
You can read and download it by clicking here. Highlights of this issue include the following: Details about FSHD Connect, our biennial meeting that brings together patients and families with… Read More »
Michelle Mackay and Retired Kellogg’s CEO David Mackay Host Second Annual FSH Society Fundraiser
From PRWeb Couple Builds upon Success of Last Year’s Event to Raise Awareness of Little-Known Disease at Lakeside Michigan Event Gull Lake, Michigan – May 25, 2014 – After last… Read More »