8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT This month, we’ll be sharing news from the FSHD Society’s annual Volunteer Leadership Summit in… Read More »
Early-Onset Parent Roundtable – VLS report
Early-Onset Parent Roundtable – Advocating for your child’s education
8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT For parents, figuring out how to advocate in schools for a child with a disability… Read More »
Early-Onset Parent Roundtable – Youth voices
8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT This month we will host a roundtable conversation with young adults with FSHD. They were… Read More »
Early-Onset Parent Roundtable with Eva Chin of Solve FSHD
8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for a conversation with Eva Chin, PhD, Executive Director of Solve FSHD, a… Read More »
Early-Onset Parent Roundtable – Pediatric FSHD Summit
8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT The end of September saw the first-ever workshop focused solely on pediatric FSHD. The workshop,… Read More »