8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT The community has shown interest in learning more about resources for modified vehicles and accessible… Read More »
Early-Onset Parent Roundtable – Accessible Driver’s License and Modified Vehicles
Early-Onset Parent Roundtable – Pediatric Updates from Our Parent Group
8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Many of you have asked us to periodically update you on the advocacy initiatives the… Read More »
Early-Onset Parent Roundtable: Speech and swallowing
8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Children with early-onset FSHD often struggle with speech and swallowing due to weak muscles around… Read More »
Early-Onset Parent Roundtable – Sharon Terry: mom, advocate, change-maker
8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for a conversation with Sharon F. Terry, President and CEO of Genetic Alliance,… Read More »
Early-Onset Parent Roundtable – Special Needs Financial Planning
8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Special Needs Planning Beyond One Day at a Time As a special needs family, living… Read More »