As we look back on the incredible year we have had, we want to acknowledge those who have shared their inspirational stories, strength and commitment to continue to do the… Read More »
Looking Back on A Year Full of Strength
#GivingTuesday is Just Around the Corner!
Join us on Tuesday, November 29, 2016 as we participate in the fifth annual #GivingTuesday! Entering its fifth year, #GivingTuesday is a global day of giving fueled by social media… Read More »
Tune in to our Ghostly Gala 2 Livestream
On Sunday, October 30th, Griff Entertainment will provide the first-ever livestream for the FSH Society’s second annual Ghostly Gala to Vanish FSHD. The gala will be held at the Cicada… Read More »
We Want You to #ShareYourVictory!
At this year’s Inaugural CureFSHD National Gala on November 11, we look to celebrate not just the victories of our tireless researchers and fearless ambassadors, but also the small (yet… Read More »
What Would You Like to #AskTheResearcher?
For the past 25 years, countless researchers have dedicated their time and energy striving to find a cure for FSHD. Thanks to the work of researchers like Dr. Jeffrey Statland,… Read More »