Big news! We’ve teamed up with the online fundraising platform Omaze to give you the chance to meet Dan Levy, of Schitt’s Creek. Dan is the co-creator and star of… Read More »
Meet Dan Levy of Schitt’s Creek!
Chicagoland chapter members invite you to their Walk & Roll to Cure FSHD!
“For all my friends and family out there who haven’t heard, I have recently been diagnosed with FSHD which is a form of muscular dystrophy. It is a progressive disease… Read More »
Walk Pioneers Lead the Way!
This September and early October, the FSH Society will host its new signature fundraising event, the Walk & Roll to Cure FSHD in five communities from coast to coast. These Volunteer Leaders… Read More »
2017 RAAM Kickoff Dinner
Race Across America fundraising for FSH muscular dystrophy June 15, 2017 from 4:00 – 7:00 pm Urge Gastropub & Whiskey Bank 2002 S Coast Hwy, Oceanside, CA 92054 Please complete… Read More »
#GivingTuesday is Just Around the Corner!
Join us on Tuesday, November 29, 2016 as we participate in the fifth annual #GivingTuesday! Entering its fifth year, #GivingTuesday is a global day of giving fueled by social media… Read More »