When Katie Ruekert reached out to the FSH Society, she discovered that by connecting with others with facioscapulohumeral muscular dystrophy (FSHD), she gained a new sense of purpose. Her husband… Read More »
With a Sense of Urgency
Looking Back on a Year Full of Strength, Part 3 of 3
As we come up on the last days of 2016, we are taking one final look back on the incredible year it has been, and one last moment to recognize… Read More »
We Want You to #ShareYourVictory!
At this year’s Inaugural CureFSHD National Gala on November 11, we look to celebrate not just the victories of our tireless researchers and fearless ambassadors, but also the small (yet… Read More »
Rocking the boat with FSHD – The Ryan Levinson Story
“Muscular dystrophy is something I might have,” Levinson said. “But it doesn’t define who I am.” Ryan Levinson, of San Diego California, was diagnosed with Fascioscapulohumeral muscular dystrophy (FSHD) in… Read More »