Join us for the annual World FSHD Day to raise awareness of FSHD globally over social media on June 20th! Learn about the orange slice selfie campaign and download our… Read More »
World FSHD Day!
British Columbia Chapter World FSHD Day Celebration
Hello Friends! Please join us on June 20th, 2023 at 6pm as we celebrate World FSHD Day together! WHERE: Tap & Barrel – Convention Centre : 876-1055 Canada Place, Vancouver,… Read More »
Help us promote World FSHD Day with a selfie video!
JUNE 20th is WORLD FSHD DAY! Help us raise public awareness of FSH muscular dystrophy by making a video selfie, urging everyone to take part in this year’s World FSHD Day awareness… Read More »
Thank you, Spencer and Carden!
This week, Spencer Wyckoff competed on NBC’s “American Ninja Warrior” to raise awareness and funds for the FSH Society. Before taking the course, Spencer and his sister, Carden, described their family’s… Read More »