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Featured Featured Event Series FSHD University

FSHD University: Mindfulness for Reducing Stress with Ginny Wholley

Zoom Web Conference , United States

19:00 CET | 18:00 GMT | 1:00 p.m. ET | 12:00 p.m. CT | 11:00 a.m. MT | 10:00 a.m. PT Mindfulness for Reducing Stress, with Ginny Wholley. Chronic stress is an inevitable part of living with a progressive condition like FSHD, and stress itself can have negative impacts on your health and well-being. In... Read More »

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FSHD University – The Burden of FSHD

Zoom Web Conference , United States

19:00 CET | 18:00 GMT | 1:00 p.m. ET | 12:00 p.m. CT | 11:00 a.m. MT | 10:00 a.m. PT The Burden of FSHD Despite the significant disease burden, little has been published on the costs associated with a diagnosis of FSHD to the healthcare and payor systems. Most previous studies examining FSHD-associated costs... Read More »