Volunteer Resources

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Resources for Volunteer Leaders

Volunteer leaders help folks with FSHD live a better life.(3)

Welcome! This resource page gives you access to the tools you need to foster Engagement, Connection, Community, and Action! You’ll find essential information such as updates from the FSHD Society, ready access to forms and documents, upcoming training opportunities, access to past trainings and materials, marketing materials and more!

Hopefully, everything you need can be found here, but if something is missing please email a member of the Community Engagement team and we will make every effort to get the information up and available to everyone.

Be IN THE KNOW!

When you have an audience, at a chapter gathering, at the beginning of a Gathering Place meeting, during a small group conversation, and all points in between, be armed with some intentional and consistent information to share!

Volunteer Training Resources

As part of our effort to provide you all the tools, insights, and tips you need to make your work with the FSHD Society more fulfilling and effective, we have provided various training opportunities. Catch up on all you may have missed or re-watch your favorites!

Staff Resources and Contacts

For Inquiries about Volunteering:

Beth Johnston - Chief of Volunteer Leadership - beth.johnston@fshdsociety.org
Lauren Kopchik – Community Engagement Coordinator - lauren.kopchik@fshdsociety.org

For Chapters:

Jenny Gast - Director of Chapter Engagement - jenny.gast@fshdsociety.org

For Fundraising Events* & the Walk & Roll Program:

*This includes Fundraise Your Way events

Jessica Wright - Director of Grassroots Fundraising

Kim Shanley - Manager of Events & Community Engagement - kim.shanley@fshdsociety.org

For Online Communities

Ashley Ferreira – Director of Education  - ashley.ferreira@fshdsociety.org

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