Meet the World FSHD Alliance Leaders
Fabio Figueiredo
Abrafeu - Brazilian Association for Facioscapulohumeral Dystrophy
Eduardo Silveira
Abrafeu - Brazilian Association for Facioscapulohumeral Dystrophy
Sylvie Genet
AFM-Téléthon France FSHD patient group and FSHD Europe
Sylvie Jaricot
AMIS FSH Association
Ria de Haas
Dutch Neuromuscular Disease Association (Spierziekten Nederland)
Kees van der Graaf
Dutch Neuromuscular Disease Association (Spierziekten Nederland) and FSHD Europe
Pierre Laurian
Fondation DUX and AMIS FSH
Neil Camarta
FSHD Canada Foundation
Macarena Díaz Ubilla
FSHD Chile
Baisheng Ning 宁栢晟
FSHD-China Patient Advocacy and Support Organization
Sheila Hawkins
FSHD Europe
Lora Chun
FSHD Finland
Lauri Pirinen
FSHD Finland
Emma Weatherley
FSHD Global Research Foundation
Alexandros Giovas
FSHD Greece
Manav Goel
FSHD India Foundation
Tali Maron
FSHD Israel
Haviva Ner-David
FSHD Israel
Annalisa Alimandi
FSHD Italia APS
Stefania Bertucci
FSHD Italia APS
Tomoyuki Nakata
FSHD Japan
Tereza Viglašová
FSHD Slovakia
George Pollock Jr.
FSHD Society
Hector Ricardo Gerpe
FSHD-Spain
Rajeshri Badiani
FSHD UK
Mitsuru Sasaki-Honda
The Japan Muscular Dystrophy Association, FSHD group
Gerda Brown
Muscular Dystrophy Foundation of South Africa
Hanne Skovgaard Jensen
Muskelsvindfonden
Lene Lebech
Muskelsvindfonden
Marieke Verbij
Spierziekten Nederland
Fabiola Maria Bertinotti
UILDM-FSHD - Unione Italiana Lotta alla Distrofia Muscolare
Micaela Doni
UILDM-FSHD - Unione Italiana Lotta alla Distrofia Muscolare
